My goodness it's been awhile since I've posted! There have been so many nights I've wanted to blog, but couldn't because of a stupid computer power cord that tries to fry the computer. Grrr...anyways here's a quick Paxy update.
He went for his cardiology visit this past Thursday. The pressures were the same as last month, which is great news! The average pressure was at 20! Wooooo! His doctor said this is the most comfortable she has been with his heart thus far. Therefore we get to wait until December to go back! And she decreased one of his heart meds from twice a day to only once a day, which is also great news! It's so nice to celebrate these "little victories". I'm sure to anyone who does not have a heart kiddo it seems dumb to celebrate getting to skip a month of seeing the doctor or getting to decrease a med, but it's the little steps that make a big difference. It's the first time since he was born that his doctor is "happy" with how he's doing and we've actually gotten a good report. *sigh of relief*
I feel like so much has happened in the last month, but for now I will leave you with a few pictures of Paxy. Oh and by the way, he is finally crawling and sitting up with no help. This means that he will NOT NEED PHYSICAL THERAPY!!!! Woo! He's such an amazing little boy!
He went for his cardiology visit this past Thursday. The pressures were the same as last month, which is great news! The average pressure was at 20! Wooooo! His doctor said this is the most comfortable she has been with his heart thus far. Therefore we get to wait until December to go back! And she decreased one of his heart meds from twice a day to only once a day, which is also great news! It's so nice to celebrate these "little victories". I'm sure to anyone who does not have a heart kiddo it seems dumb to celebrate getting to skip a month of seeing the doctor or getting to decrease a med, but it's the little steps that make a big difference. It's the first time since he was born that his doctor is "happy" with how he's doing and we've actually gotten a good report. *sigh of relief*
I feel like so much has happened in the last month, but for now I will leave you with a few pictures of Paxy. Oh and by the way, he is finally crawling and sitting up with no help. This means that he will NOT NEED PHYSICAL THERAPY!!!! Woo! He's such an amazing little boy!