Thursday, August 9, 2012

I wanted to share an update about Paxy with you all. I waited so long because we just wanted to process the information and we wanted to wait until we received some extra news, which we got yesterday. So basically, our surgeons here in Tulsa have decided there's nothing more they can do for Pax and thought that a transplant was the best option for him. So they sent his records off to Dr. Canter in St. Louis to be reviewed for transplant. Yesterday Dr. Canter contacted Pax's cardiologist who then relayed the info to us. They don't think Pax is a good candidate for transplant right now because all of his numbers are so good and he's doing so well. However, they do think they might be able to do a surgery to help him out. They want us to go up to St. Louis to have some tests done to check his heart for fibrosis/scarring. If there isn't scarring then they can probably do the procedure. If there is too much scarring then they'll evaluate him for transplant. So right now I'm just waiting on a call from St. Louis to schedule everything.

In other news I'm soo excited today because my weight finally entered a new "decade"!! I haven't been in this decade since probably 2006. I've lost 15 pounds so far and believe me I have worked hard for those pounds! Now just... A whole lot more to go! Haha


  1. I'm gonna take this info as positive news. I'm prayin' that surgery is an option for Pax. In the meantime we all know that God can touch him in a mighty way.

    Here's sendin' ya a BIG CONGRATULATIONS on your healthy accomplishment. You go girl!

    God bless and have a terrific evenin' sweetie.

    Love ya! :o)

  2. Way to go on the weight.Keep up the good work. That is really good news on Pax's heart.Praying that there is no scaring and they can continue with the surgery.I pray it all works out for you.

  3. I ran across your profile on babycenter (I passed you a note on there) but I wanted to leave a comment to let you know that ill be praying for your little man. My Shaeli was born 2/22/2010 with Shones as well! She had OHS 2/26/2010 and second major surgery 03/16/2010. I also have a 4 y/o with some sensory issues and ADHD. Praying for y'all. Betti