Saturday, December 8, 2012
For the whole month of October wr were without insurance for the kids due to some stupidness on Soonercare's part, but thankfully we got it back just in time for Pax's cardiology appointment. That would have been about $1600 out of our pocket! Thank you Lord for Soonercare so we never have to pay anything for our kids' coverage! Kaiden is now back on schedule with his Occupational & Speech therapies and starting next week he will get to strt his physical therapy. I'm so thankful for these services because they have so greatly helped him.
Another thing I'm grateful for are free clinics! I had gone to the free clinic for what I assumed was thyroid problems back in March. They didn't do anything then, but my symptoms have gotten so much worse. I'm absolutely exhausted...all...the...time!! I vacuum and mop and I'm done! My hair is falling out too...like crazy and I don't even have a lot of hair to begin with. I've always have fine hair so losing any is a big deal. Josh tries to make me feel better about it, but I know it's noticible. Anyways, I finally got up the guts to go back this past Tuesday and after being there about 4 hours I left with a prescription for Levothyroxine and an appointment for a follow up in a month. Supposedly it takes 8ish weeks to kick in and start feeling better, but I'm hoping with all my might that they kick in much sooner!
Today we took the kids to Toys R Us to look around and get some ideas for Christmas. SUCH a bad idea! It was absolute sensory overload for Kaiden and it was insanely busy. Duh Cari! It's 2 weeks before Christmas...of course it's busy! I ended up having to carry Kaiden out after an all out meltdown. Still, I'm looking forward to goin Christmas shopping next week for the kids. Christmas is going to be so wonderful this year. Tim and Teresa are probably coming to town for Christmas. They are such a blast to have around. I love love love my family!
Well I hear the kids making a lot of noise so I better interven before our neighbors call the cops! Ha!
Wednesday, November 28, 2012
There's some of them in their costumes. Dakotah was a ninja, as Ninjago (a tv show) is his current obsession. Kaiden was an Angry Bird and Pax was Elmo. It took a lot to get him to wear that costume. We finally forced it on him and immediately put him in his carseat so he couldn't wiggle out of it before Superhero Fest at church. Don't worry I don't think he was emotionally scarred. Haha
Theres also a picture of Kaiden at his Thanksgiving Feast at school. Pizza and sprite, the perfect Thanksgiving meal. :)
And the other picture is of Josh and the boys having "music time". They are so adorable when they do that. :)
Sorry the pictures may be out of order and I can't put my text with the pictures. The lovely Blogger app on my phone won't let me. Nonetheless I hope you get some smiles out of the pictures.
Monday, October 29, 2012
The last several weeks have been hard, but it has given me a new perspective on things. It's given me the chance to re-evaluate my goals and what's important so for that I'm thankful.
Tuesday, September 25, 2012
Okay so his pressures are unchanged from after the cath in St. Louis, which is great news. Everyone was really pleased with how well he handled the procedure there and feel like they were able to give him some time before surgery. His pressures are about 50 right now. When they get to about 80 they'll want to do the surgery. The Ross-Konno is what they are looking at doing. They all think surgery will probably happen in March or April, but I'm doubting that. I think he'll go much much longer and I'm still expecting a miracle. I know wht God has already started in him He will complete. I can't remember if I shared this or not before, but a couple months ago when Josh was praying about Pax God spoke to him saying He would give him a new heart. A couple Sundays after that we were being prayed over and that was prophecies over Pax again and then it happened a 3rd time from someone else. I think God's trying to say something here. Haha! We have a few scriptures that we have been standing on that I'll have to share another time. I'm typing this on my phone an don't have the references on hand. So that's what we have been praying and speaking over him. Pax has a new heart praise God!
Thankfully our St. Louis trip was covered by donations from people, but we have been having "fun" trying to stay afloat from Josh missing that week of work. Please be praying and believing with us that extra money would come in somehow to help get us back to where we need to be. God is so faithful and has brought us so far. I know He'll keep providing for us.
Pleas ignore the typos...my phone isn't compatible with my fat fingers! Haha
Friday, August 31, 2012
St. Louis!!
Sunday, August 12, 2012
You hold my very moment
You calm my raging seas
You walk with me through fire
And heal all my disease
I trust in You, I trust in You
I believe You're my healer
I believe You are all I need
I believe
And I believe You're my portion
I believe You're more than enough for me
Jesus You're all I need
You hold my very moment
You calm my raging seas
You walk with me through fire
And heal all my disease
I trust in You, Lord I trust in You
I believe You're my healer
I believe You are all I need
Oh, I believe
I believe You're my portion
I believe You're more than enough for me
Jesus You're all I need
Nothing is impossible for You
Nothing is impossible
Nothing is impossible for You
You hold my world in Your hands
Nothing is impossible for You
Nothing is impossible
Nothing is impossible for You
You hold my world in Your hands
I believe You're my healer
I believe You are all I need
Oh, yes You are, yes You are
And I believe You're my portion
Lord I believe You're more than enough for me
Jesus You're all I need
More than enough for me
Jesus You're all I need
You're my healer
Thursday, August 9, 2012
In other news I'm soo excited today because my weight finally entered a new "decade"!! I haven't been in this decade since probably 2006. I've lost 15 pounds so far and believe me I have worked hard for those pounds! Now just... A whole lot more to go! Haha
Friday, July 27, 2012
Thursday, July 26, 2012
Wednesday, July 11, 2012
Cath Scheduled
Oh, I thought I'd include a funny picture for you. This past Friday Josh and I went to the wedding of some really close friends. I don't consider myself to be photogenic at all, but I'm pretty good at taking goofy pictures so here ya go. (The other woman is my lovely sister-in-law, Lish.)
And here's a picture I took of Pax and Kaiden playing in the laundry basket.
Saturday, June 30, 2012
Well to start with, after 4-5 weeks I FINALLY got my biopsy results back. (They somehow got lost.) The mass was determined to be a thyroid benign cyst. So it's totally fine right now. Since it isn't interfering with breathing or swallowing or my thyroid function they'll just keep leaving it alone. I'm supossed to follow up on my thyroid numbers in a few months though and keep an eye on any symptoms in the meantime. So good news! Still taking the Prozac for now to help with the fatigue, which by the way that stuff makes you hot and sweaty, but it has helped so I'll keep taking it for now. Guess I'll stay warm this winter. Haha!
In May I celebrated my 29th birthday, which means only 1 more year of being officially "young". Although I don't think being in your 30's is "old" but being in your "20's" is just different. It feels younger. I plan to accomplish a whole lot this next year.
Josh and I celebrate our 9 year anniversary June 7th. It's hard to believe that next year will be 10 years. For the past 9 years we have jokingly talked about what we would do for our 10 year anniversary and now that it's only a year away I guess we should start saving for that cruise we wanted to take. Not to mention childcare for while we are gone. Haha! We had a wonderful time celebrating our anniversary though without any kids, thanks to the in-laws. :) We went to OKC and went to the Bombing Memorial. Wow...such a heavy place, but so amazing to stand there. We went through the museum which made everything even more meaningful. If you ever get the chance, go to the memorial and museum. Do the museum though before going outside on the grounds. It makes it a much more profound experience.
One year ago this past Thursday Pax had his heart cath and we got horrible news that he would need another open heart surgery. This past Thursday he went for his cardiology check up and we weren't given horrible news, but not great news either. Basically his pressures have still been increasing. Enough so that his doctor is concerned now. Next Friday all the doctors and surgeons will meet to talk about cases and they'll discuss Pax then too. His cardiologist wants him to have another heart cath to determine exactly where the narrowing is located and get a better idea of how bad it is. The general area is the same place he had repaired last August, but they can't tell the exact location. If the narrowing is located far enough above the aortic valve then they might be able to balloon it during the heart cath, otherwise he would need another open heart surgery. So please be believing with us that they will be able to just balloon it open. His cardiologist is supposed to call me next Friday afternoon after the meeting to let me know how the meeting went and how soon they decided to do a cath. I know that no matter what God has been with us throughout everything so far and we've already seen Him do miracles in Pax so I only expect the same.
I'll leave you with a few recent pictures.
Wednesday, May 9, 2012
Sunday, April 29, 2012
As for the growth in my neck, I had an ultrasound done and now I'm being scheduled for a biopsy hopefully in the near future. If I haven't heard from them this week I'm supposed to call them. Hopefully I hear something Monday or Tuesday though.
I'm not too worried about all this though. I had it biopsied 8 years ago and it was fine so I don't expect this time to come back any different. Besides that, I serve a big God who's got my back. :)
Sent from my iPhone
Wednesday, April 11, 2012
Easter Pictures
Tuesday, April 10, 2012
Prayers Appreciated :)
Love
Friday, April 6, 2012
Cardiology Visit And Easter Weekend!
Tuesday, February 21, 2012
Going home is always fun, but it always brings a lot of memories back too. It makes me think about my Mom a lot, which of course makes me miss her even more. For some reason a certain memory stuck out to me more than normal. When we go down to Branson we always drive by Skaggs hospital multiple times. (Mom passed away at Skaggs.) When we drove into Branson Friday night and drove by the hospital, as we passed I looked down the road and could see the exact spot where my Dad met my brother, sister and I to give us the news that she was gone. On that very early morning in May 2001 when Dad gave us the news my 1st reaction was to drop to my knees, lift my hands and start worshiping God through my tears of sorrow. My 1st reaction. I so distinctly remember doing this and how I was feeling at the time. I had always lived a life dedicated to God and had always wanted to serve Him, but in the days leading up to Mom's passing God brought me even closer to Him...probably in preparation for what was to come. So on that morning, I think in that moment I was surrendering everything to Him and choosing to praise Him no matter what life would bring. All of this came flooding back to me this past Friday night as we drove by, as well as every other time we drove by this weekend. I remember being so close to God and I had to ask myself if I was still in that same spot with God or if I had pulled away. The answer is no, I'm nowhere near as dedicated as I was then, but how I long to have that close relationship with Him again...and I've been working on it. There's nothing like it in the world. No earthly relationship could ever even come close to being as awesome as a close relationship with God.
It's hard sometimes to make time for your Maker when the kids are screaming, the house needs cleaned, breakfast, lunch and dinner need to be made and not to mention the enormous pile of laundry that needs washed, folded and put away. However, I KNOW that as I make time for HIM that somehow there will be more time in the day to accomplish all the Mom/Wife stuff. I just have to learn to put Him 1st and let Him be my 1st reaction again...in any situation.
Matthew 6:33 NKJV "But seek first the kingdom of God and His righteousness, and all these things shall be added to you."
Ps. 69:32 NKJV "The humble shall see this and be glad; And you who seek God, your hearts shall live."
Tuesday, February 14, 2012
There's a whole lot more statistics that I could mention, but I'll move on. Recently I did an interview for Stephanie's blog where I got to tell Pax's story. If you'd like to read it click here.
She is doing a series of interviews with heart Mom's for CHD awareness month. You should go over and read some of them. They are so inspirational! Be sure to have some tissue ready though because you'll probably let a few tears drop.
Oh and I almost forgot...Dakotah is taking part in a fund raiser at school called Hoops For Heart for the American Heart Association. His goal is to raise $250, by Thursday. (He has to turn everything in on Friday.) He only needs $150 more to reach his goal. Here's his website that he has set up for it. You can read more information about it here.
Have a lovely Tuesday!
Monday, February 13, 2012
On another note, this weekend was quite eventful. Last Thursday Dakotah had a major asthma episode that got him sent home from school. Then later that night I ended up taking him to urgent care who sent him to the hospital for the night. After breathing treatments every 2 hours and some other meds he is on the mend. He's finally back on controller meds for his asthma and finally got an inhaler instead of the nebulizer. Oh I was so sick of that stupid machine that takes forever!! Tomorrow he goes for a follow up appointment with his pediatrician so we'll see what they have to say.
Today was an almost snow day at home day, but for many of you it is a snowed in at home day so enjoy!!
Saturday, February 4, 2012
Pax has recently learned how to climb onto things such as the couch, chairs, the diningroom table, my bed...oh and the bunkbed ladder! Thankfully he can only get to the 2nd step, but it only took him about a week to learn that so I'm sure that it won't be much longer before he learns to crawl to the very top. Oh dear!! He has also learned to WALK! Yay!! While I'm very proud of this achievement and glad that he has finally done it, it means I have to keep an even closer watch on him. He's just in the beginning stages of walking though so he loses his balance a lot so I've got a few more "lazy" days. Ha! I've been trying to catch him on video and I finally did today for a few seconds. I'm blogging from my phone, but I'll try to post it for y'all.
On a different note, Pax and I have the entire day all to ourselves. Josh and the band traveled to Missouri for the whole weekend for a show and so Josh could preach at a church. And Kaiden and Dakotah went to Wichita with Grandma & Grandpa Coats to celebrate cousin Isabel's 5th birthday. I'm thinking shopping is definitely on the agenda today. :) That and some peace and quiet. Enjoy your weekend everyone!
Thursday, January 5, 2012
Pax also had his December cardiology visit and his 1 year check up. They both went well. His cardiologist said that the pressures have pretty much stayed the same. In addition to the issues with the pressures in the aorta his mitral valve looked "tight", but that was all she said about that. She said she felt safe in letting him wait until March to go back so that's when we will go back. She said he'd probably need a cath either then or within a couple months of that. But for now he's doing very well. He's growing and developing well. :)
His pediatrician is also happy with him. He had been really sick (GI stuff yuck!) for a few weeks so he got to temporarily miss out on getting his 1 year shots...there are 6...yes, 6 of them! How excessive is that!!?? Geez! He's in the 50% for height and 15% for weight. I'm not worried though...Dakotah has always been in the 10% for weight, while Kaiden was always at least 50%. We got to report that Pax had learned to sit and stand and walk around while holding onto stuff so he won't be needing physical therapy. yippee!! He's getting very close to walking too. The other night he took his 1st small step!! Yay!!! I love to watch my children growing and learning.
I think that's it for now. I'll post some recent pictures when my internet and computer cooperate. :)